As well as, raise awareness about this debilitating condition, in the hope to generate funds for medical research into achieving a Raynaud's Free World.
He leads a large clinical programme in scleroderma at the Royal Free Hospital and co-ordinates multidisciplinary care for more than 1400 patients. He was previously chair of BSR's Heberden Committee and currently chairs the UK Scleroderma Study Group (UKSSG).
The Royal Free Hospital has the largest centre specialising in scleroderma in the UK and it is led by Professor Chris Denton.
Donations to support the clinical and research activity of the Scleroderma Unit are invaluable.
My Raynaud’s reality, Click here
|Hottest day of 2013 - Im wearing Ugg boots and gloves to try and prevent a Raynaud's attack!|
|Dr Howell and I, Sept 2017|
Planning for the Future, Click here
Rare Disease Day 2020:
Raise awareness and donate to medical research, order your #SclerodermaFreeWorld #RaynaudsFreeWorld tshirt here
Rare Disease Day 2019: Leaving a Legacy Gift, Click here
Rare Disease Day 2019: 11am 97.4RockFM headlines, NO CURE, Click here
2017 Rare Disease Day Flashback
provides the brightest light,
for the illumination of
the rare disease patients’ plight.
To read about medical research at the scleroderma unit, Click here
If we only had more RESEARCH investment for Scleroderma, Raynaud's, Autoimmune Rare Disease, Click here
The Importance of Medical Research and Awareness to the Scleroderma, Raynaud's, Autoimmune Rare Disease patient, Click here
2018 Scleroderma Awareness Raising and Medical Research, Click here
Unmet Medical Needs, Click here
Calcinosis Video, Click here
The scleroderma tooth fairy, Click here
Skin Cancer and scleroderma, Click here
|Prof Chris Denton and I, Sept 2017|
|Chat Magazine May 2019|
|James Carver, myself, Prof Chris Denton|
I am immensely grateful to James Carver, former MEP, for organizing this event in memory of his late wife Carmen, who sadly passed from Scleroderma.
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research
100% of your monies will be used for medical research purposes only. NO wages or admin costs. Thank You.